Spotlight Session: Insights from Ropes & Gray

TL;DR

Technology and big data are playing a crucial role in healthcare, but their use is met with legal and ethical hurdles.

Transcript

all right one topic that we have touched on but haven't really been able to take a deep dive into is technology and big data and thankfully we have ropes in gray here as our sponsor today and Marc Barnes partner at ropes in gray to talk to us about just that and sort of set us up for the rest of the discussions this afternoon Marc advises clients t... Read More

Key Insights

• 😨 Data analytics plays a crucial role in value-based healthcare, allowing for the understanding of patterns in care and outcomes.
• 🤗 Emerging sources of data, such as open science repositories and disease advocacy group registries, provide new opportunities for research and analysis.
• 🏚️ Legal and ethical challenges, including data de-identification, individual rights claims, appropriate data use, and international data regulations, pose hurdles in the use of healthcare data.
• 😒 Transparency and privacy rights present a complex issue in balancing the benefits of data use with individual privacy concerns.
• 😒 International data regulations, such as the GDPR, impact the use and sharing of healthcare data.
• 👏 Data can be used for marketing purposes and non-healthcare applications, raising questions about consent and ethical use.
• 😒 The collision of transparency and privacy rights highlights the need to carefully consider the implications of data use in healthcare.

Questions & Answers

Q: What are some potential sources of data in value-based healthcare?

Potential sources of data include open science repositories, clinical trial data, disease advocacy group registries, genomic databases, and laboratory science data.

Q: What are the legal and ethical hurdles in the use of healthcare data?

Hurdles include the difficulty of de-identifying data, individual rights claims, appropriate use of big data, international data regulations, and the conflict between transparency and privacy rights.

Q: How does the European Union's General Data Protection Regulation (GDPR) impact healthcare data?

The GDPR applies to almost all data, including health data, and imposes stricter regulations on secondary processing and individual rights to access, control, and erasure of personal data.

Q: How can healthcare data be used for marketing and other purposes?

Data can be used for marketing healthcare products, as well as for non-healthcare purposes such as determining credit scores, price discrimination, and social credit scoring systems.

Summary & Key Takeaways

• Mark Barnes discusses the importance of data and data analytics in value-based healthcare, focusing on its use in research and development in academia and industry.

• He highlights emerging sources of data in healthcare, including open science, clinical trial data, disease advocacy group registries, genomics, and laboratory science.

• Barnes emphasizes the legal and ethical challenges surrounding the use of data in healthcare, including the difficulty of de-identifying data, individual rights claims, appropriate use of big data, international data regulations, and the collision of transparency and privacy rights.