Spotlight Session: Insights from Ropes & Gray | Summary and Q&A

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May 10, 2019
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Bloomberg Law
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Spotlight Session: Insights from Ropes & Gray

TL;DR

Technology and big data are playing a crucial role in healthcare, but their use is met with legal and ethical hurdles.

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Questions & Answers

Q: What are some potential sources of data in value-based healthcare?

Potential sources of data include open science repositories, clinical trial data, disease advocacy group registries, genomic databases, and laboratory science data.

Q: What are the legal and ethical hurdles in the use of healthcare data?

Hurdles include the difficulty of de-identifying data, individual rights claims, appropriate use of big data, international data regulations, and the conflict between transparency and privacy rights.

Q: How does the European Union's General Data Protection Regulation (GDPR) impact healthcare data?

The GDPR applies to almost all data, including health data, and imposes stricter regulations on secondary processing and individual rights to access, control, and erasure of personal data.

Q: How can healthcare data be used for marketing and other purposes?

Data can be used for marketing healthcare products, as well as for non-healthcare purposes such as determining credit scores, price discrimination, and social credit scoring systems.

Summary & Key Takeaways

  • Mark Barnes discusses the importance of data and data analytics in value-based healthcare, focusing on its use in research and development in academia and industry.

  • He highlights emerging sources of data in healthcare, including open science, clinical trial data, disease advocacy group registries, genomics, and laboratory science.

  • Barnes emphasizes the legal and ethical challenges surrounding the use of data in healthcare, including the difficulty of de-identifying data, individual rights claims, appropriate use of big data, international data regulations, and the collision of transparency and privacy rights.

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